Survivorship

As life after treatment begins, survivors and their families often have new questions about what comes next, such as follow up care and long term health. People who had cancer as children, often called childhood cancer survivors, may experience physical or emotional effects from their cancer or treatment, months or even years later.

COG offers resources to help survivors and their families, and healthcare providers through this lifelong journey. These include guidelines for long-term follow-up care, easy-to-understand educational materials, and tools to help manage care. Together, they help catch possible late effects early, encourage regular check-ups, and support survivors in staying healthy over time.

Long-Term Follow-Up Guidelines

COG’s Long-Term Follow-Up (LTFU) Guidelines provide medical teams with an evidence-based framework for monitoring and managing the long-term effects of cancer and its treatment. They outline risk-based recommendations for specific screenings and follow-up care based on the therapies each patient received.

Your care team may use these guidelines during routine medical visits to deliver consistent, high-quality care, identify potential late effects of treatment earlier, and support survivors in understanding and managing their long-term health.

COG Long-Term Follow-Up Guidelines Appendix I (Materials for Clinical Application) Appendix II (Entire Set of Health Links) Comprehensive Document (Guidelines/Clinical Application Materials/Health Links) Summary of Cancer Treatment (Abbreviated) Summary of Cancer Treatment (Comprehensive)

Health Links

Health Links are patient education materials designed to help childhood cancer survivors and their families understand potential long-term health effects after treatment. These resources support conversations between survivors and their healthcare providers during follow-up visits.

Archive

Access earlier versions of the COG Long-Term Follow-Up Guidelines, which show how the recommendations have changed over time. The archived guidelines also include explanations of what was updated and the research used to support those changes.

Additional Resources

  • For Survivors and Families

    Passport for Care opens in a new tab is a free, online tool that generates a personalized treatment summary, potential late effects, and a long-term follow-up care plan based on COG’s Long-Term Follow-Up Guidelines. These materials help survivors and their healthcare providers understand what to monitor over time and guide care based on each survivor’s specific treatment history.

     

  • For Clinicians and Care Teams

    REDCap Database for Guideline Use Requests opens in a new tab: Use this form to request translations or reprints of the COG Long-Term Follow-Up Guidelines, or to get permission to use guideline content.

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