Children’s Oncology Group (COG) offers trusted educational resources to help patients, families, and caregivers better understand childhood cancer, treatment, and life beyond diagnosis. From the first days after diagnosis through treatment, survivorship, and follow-up care, these tools are designed to provide reliable guidance at every stage of the journey.
COG’s patient and family education resources include practical guides for newly diagnosed patients, caregiving at home, adolescent and young adult support, and long-term survivorship. Developed by COG experts, these tools help families better understand what to expect, make informed decisions, and access support throughout treatment and beyond.
Resources are available in multiple languages and formats for printing or digital viewing, making them accessible to patients and families. These resources were created by the COG Nursing Committee and are provided to patients and families at no cost through the generosity of the St. Baldrick’s Foundation.
The COG KidsCare App gives families mobile access to trusted COG Family Handbook content, along with practical tools to help manage care throughout treatment. Features include searchable educational content, appointment tracking, and journaling tools to help families stay organized and informed.
The app is available in English, Spanish, and French in the Google Play and App Store.
The COG Family Handbook is a trusted guide for families navigating childhood and adolescent cancer. It provides reliable information about diagnosis, treatment, supportive care, and life during and after treatment, helping families better understand and manage each stage of care.
Explore downloadable guides designed to support patients, families, and caregivers through diagnosis, treatment, survivorship, and beyond. These resources include the New Diagnosis Guide, Caring for Your Child at Home slide set, and AYA New Diagnosis Guide in several different languages. Additionally, the Family Handbook is also provided in several languages beyond English, French, and Spanish thanks to volunteers from COG member institutions.
COG’s Long-Term Follow-Up Guidelines were developed as a resource for clinicians who provide ongoing healthcare to survivors of pediatric malignancies. As a companion to the COG’s Long-Term Follow-Up Guidelines a series of Health Links have been developed to provide more in-depth information about some of the more common late effects.
New Diagnosis Guide (English) (Spanish) (French)
New Diagnosis Guide Slide Set (English) (Spanish) (French)
AYA New Diagnosis Guide (English) (Spanish) (French)
COG Family Handbook (English) (Spanish) (French)
COG’s Long-Term Follow-Up (LTFU) Guidelines
Translation Disclaimer:
These translations have been produced by volunteers sponsored by the indicated organizations. These translations are for informational purposes only and are published pursuant to the COG Patient and Family Education Resources Translation policy. The format, illustrations, and graphic designs of these translated versions may differ from the COG Family Handbook, Second Edition (©2011), but the content is the same. COG makes no warranty, expressed or implied, of any kind in relation to the translated material, and disclaims any liability for any incorrectly translated information. The sponsoring organizations take full responsibility for the content and translation of these publications.
*Note – These resources do not have the updated information of Fatigue and physical activity which were added into the New Diagnosis Guide and AYA New Diagnosis Guide in 2024.
Clinical trials are research studies that test how well new medical approaches, such as drugs, treatments, or screening methods, work in people to improve care and quality of life. These studies are carefully designed and monitored to ensure safety and effectiveness, rely on voluntary participation, and are essential for turning scientific discoveries into real-world patient treatments.
For COG Member Institutions Only
Click here to order printed copies of the COG Family Handbook and New Diagnosis Guide.
The AYA New Diagnosis Guide and Caring for Your Child at Home slide set are DOWNLOAD ONLY.
NOTE: Once your COG Family Handbook and New Diagnosis Guide(s) order ships, you will receive a UPS tracking number. Please allow 12-14 weeks for delivery.