Landier W, Campos Gonzalez PD, Henneberg H, York JM, Wadhwa A, Adams K, Madan-Swain A, Wolfson JA, Benton B, Seidel C, Slater V, Snuggs K, Folsom A, Miller J, Tomlinson K, Zupanec S, Bhatia S. Children’s Oncology Group KidsCare smartphone application for parents of children with cancer. Pediatr Blood Cancer. 2023 Jun;70(6):e30288. doi: 10.1002/pbc.30288. Epub 2023 Mar 21. PubMed PMID: 36945123; PubMed Central PMCID: PMC10631815.
Study ID Citation
Abstract
Parents of children with cancer must learn and retain crucial information necessary to provide safe care for their child. Smartphone applications (apps) provide a significant opportunity to meet the informational needs of these parents. We aimed to develop, refine, and evaluate a smartphone app, informed by the Children’s Oncology Group (COG) expert consensus recommendations, to support the informational needs of parents of children with cancer. We employed a user-centered iterative mixed-methods approach in two phases (prototype development/refinement and pilot testing). We engaged parents and clinicians in evaluating the app via qualitative interviews and standardized tools that measured app quality (Mobile Application Rating Scale [MARS]), usability (System Usability Scale [SUS]), and acceptability (System Acceptability Scale [SAS]). We evaluated early usage patterns after public release.