Characteristics of Health Care Settings Where Adolescents and Young Adults Receive Care for ALL

Wolfson JA, Grimes AC, Nuno M, Kerber CL, Ramakrishnan S, Beauchemin M, Dickens D, Levine JM, Roth ME, Scialla M, Woods W, Vargas S, Boayue KB, Chang GJ, Stock W, Hershman D, Curran E, Advani A, O’Dwyer K, Luger S, Liu JJ, Freyer DR, Sung L, Parsons SK. Characteristics of Health Care Settings Where Adolescents and Young Adults Receive Care for ALL. JCO Oncol Pract. 2024 Apr;20(4):491-502. doi: 10.1200/OP.23.00328. Epub 2024 Jan 22. PubMed PMID: 38252911; PubMed Central PMCID: PMC11085951.

Individuals diagnosed with cancer between 15 and 39y (AYA: adolescent and young adult) face unique vulnerability. Detail is lacking about care delivery for these patients, especially those with acute lymphoblastic leukemia (ALL). We address these knowledge gaps by describing AYA ALL care delivery details at NCI Community Oncology Research Program (NCORP) (sub)affiliates by model of care. Participating institutions treated at least one AYA with ALL from 2012–2016. Study-specific criteria were used to determine the number of unique clinical facilities (CF) per NCORP, and their model of care (adult/internal medicine (IM), pediatric, mixed [both]). Surveys completed by NCORPs for each CF by model of care captured size, resources, services, and communication.